Largest diabetes registry created using medical informatics data

According to a study published in the Centers for Disease Control and Prevention’s (CDC) “Preventing Chronic Disease” journal, de-identified patient health information culled from 11 separate medical informatics systems forms the basis of the largest repository of diabetic data in the country.

The Management of Diabetes Mellitus DataLink (SUPREME-DM) includes information from more than 1.1 million diabetics across the country, making it the largest private sector database on diabetes in the U.S. The system is part of the HMO Research Network’s Virtual Data Warehouse, which encompasses 19 healthcare delivery systems that use standardized data formats in their clinical informatics systems.

Healthcare IT specialists used a unique algorithm to extract data from more than 15 million patient records based on their diabetic condition.

“Our database contains an ethnically and geographically diverse population of women and men who mirror the general population with diabetes,” said John Steiner, co-author of the report and senior director with the Kaiser Permanente Institute for Health Research in Denver. “We can follow these patients over time and expect that what happens with our patients will also happen with patients throughout the country.”

Records of patients residing in California, Colorado, Georgia, Hawaii, Michigan, Minnesota, Oregon, Pennsylvania, Washington and Wisconsin were gathered to create the repository. The system includes information such as test results, prescription records, hospital and clinic visit information, in addition to the vital statistics of more than 1 million people with diabetes.

More than 33 diabetes specialists from across the country are involved in the project, which officials hope will yield new data for treatment research and improve the quality of care for diabetics. The CDC estimates that almost 19 million individuals suffer from diabetes in the U.S.

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